Just a small update this week as it has generally been a good week with just some minor symptoms returning.
On Wednesday I had an appointment with my local GP, I had a list of problems to discuss. This year I seem to be racking up new problems.
We started by examining a new mole like lump on my stomach, after a thorough check the doctor said its all good. Apparently its a side effect of the azathioprine but he did say its always best to get it checked out. Next on my list was an itchy scalp, Doctor said its is a form of psoriasis so now I got a new shampoo to use. Next on the list was my joint pain in my knee’s (another side effect of Crohn’s), Due to having Crohn’s I can’t take the normal NSAIDS (non steroidal anti inflammatory drugs) like Ibuprofen which is good for joint pain so instead I’m stuck with paracetamol and codeine. The final item on my list was my heart, the nurses at the hospital noted I had a fast heart rate (around 120) and said I should get it checked out. The doctor took my heart rate and it was sitting at 98 with fluctuations up to 120, He then listened for any murmurs or defects; of which he found none thankfully. We arranged for an ECG to be done on Friday morning but thinks it’s due to all the medication I’m on but still wants to check and monitor it.
ECG and Infliximab
On Friday morning the nurse did my ECG; lots of wires and stick pads attached to me, why does everything require a stick pad that loves to pull off the hair for free! The nurse said the ECG looked ok but the doctor would check the results and let me know.
On Friday afternoon I had my 3rd loading dose of Infliximab, the day case unit was busy as always but this time they were running behind and after doing all the pre checks we got started. Everything went ok again apart from being late finishing and 2 nurses had to do some overtime, we have made sure my next appointment has an earlier start time. I’m now on 8 weekly infusions of Infliximab which will hopefully keep my symptoms in check. I must say after this infusion of Infliximab I was tired that evening but felt fine over the weekend which is a great improvement so I’m hoping it stays like that.