Jun 022015
 

Bone density scan

Just over a week ago I went for a bone density scan to see what if any damage has been done to my bones by all the steroids and other medications I have taken over the years for my Crohn’s. The technician did several bone density scans of my hip and spine from both top and the side, it took around 10-15 minutes in total. It involved me lying on a firm bed while the scanning head moved around me. At the end the technician said “I can’t tell you the results of the bone density scan but I will give you all the leaflets on osteoporosis and the different treatments available”, so reading between the lines id say I got osteoporosis but have to wait until the end of June to get the official result from the bone density scan when I next have a meeting with my consultant. If anyone wants more info on osteoporosis just head over to the National Osteoporosis Society website.

General update

This past fortnight has been a mixed bag of good and bad days for me, probably more good than bad but only just. The biggest bad part was being in pain for 2 days with a bit of food stuck in my bowel at a narrowing in the bowel and after some not so gentle prodding of my stomach soon had the food moved and the pain subsided. The other bad part was a few days where my Crohn’s played up big time and it felt like I was back in a full flare-up again but it settled down quickly.
Another bad part has been the pain in my knee’s, I’ve always had bad knee’s but this last fortnight has been really bad. I went for a short 2 mile walk along the seafront on my birthday and it left my knee’s in agony for days after to the point I had to take pain killers.

One of the good parts of the last fortnight was spending time with my family, I spent 5 days staying with my parents and celebrating my birthday and just relaxing and having a proper rest to help recover from my latest Crohn’s flare-up.
Another good part was I decided to start volunteering to help run my nearest Crohn’s and Colitis group which for me is Brighton & West Sussex Group.
I have been attending the monthly meet-ups they have for the last 5 months and decided because I got so much from the group I wanted to help and they are always looking for more people to support the groups. I attended a Volunteers meeting one evening and learned that the group is looking for a complete new organising team due to the old members wanting to take a back seat for a while. So I decided I would take the role of co-ordinator, I’m also doing the Facebook and Twitter page as well at the minute.

The last good thing was I finally got a date for my surgery for my teeth, The 25th June I will be going into hospital in Winchester and having most of my teeth removed while I’m under General Anaesthetic. It has taken 3 years of being refereed here and there to finally get a date, I’m looking forward to it but also nervous at the same time, my teeth are almost all broken and falling apart so there is no saving them. This is just another thing to thanks my Crohn’s for, although Crohn’s doesn’t give you bad teeth the diet and medication can have a huge impact on them.

Its now just a few days before my final loading dose of Infliximab and then I will be on 8 weekly Infusions, Not sure how my body is going to react to the 8 week gap as I can already tell its wearing off now but time will tell. I’m also hoping I don’t get any infections due to my teeth surgery otherwise it will delay the Infusion even further.

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